Head in the Clouds

Originally published 02/24/05

well, look at that. boy i have a tendency to wander around in my journals and the like. i'll be writing along and creatively fall asleep for a few months, and when i return i notice the flow from my last entry to this will make no sense.

then again, it could be the way life tends to throw curves at you when you least expect them.

tony's psc is getting worse. he has an ultrasound on march 3 to determine various things, then he's going to meet with the transplant people. he is very symptomatic now, itching is bad, pain in his joints, and the fatigue is the worst. it's...exhausting to watch him get through a day.

to make matters worse a gentleman in our psc support group was rediagnosed with psc in november after being transplanted last february. less than a fucking year and the disease is back. so much of this disturbs me...the hope that comes with a transplant dashed by the return of the illness...the liver that was transplanted in now wasted...having to go through the whole gammut all over again. his poor family.

there's a psc conference in denver in april. i so wish we could go, but on top of airfare and 89 a night for the hotel room, the registration for the conference is 300 per couple. just not possible this year. maybe next...

need to check with the pharmacy to see if his meds confusion was cleared up by the doc...